What a week! I have not had time to sit down and write a single word here as every day this week I have had an appointment (or even two!) somewhere. So many hospitals! Oh the life of a spoonie!
On Monday morning I was at the vascular surgeon who is planning some scans and tests to hopefully rule out another possible rare condition (I’m not having much luck so far on those fronts so wish me luck!) and then over to haematology in the afternoon. I’ll worry about those if/when I know more after all my tests but I have several planned including scans and one involving a hospital stay which I’m hoping I can get out of the way before September.
On Tuesday my hair was cropped by about a foot! Still just a blunt cut as with my bendy neck I can’t cope with a salon back-wash or even the forward leaning version! It should be a lot easier for me to manage now though and it will also be a much easier length for when it comes to learning how to place a bald cap!
On Wednesday I was at St Mary’s women’s hospital and today I should be having a pre-operative assessment at Blackburn in order to have one of my teeth sorted out but am physically unable to move out of bed to go! I have dislocated multiple joints this week, messed up the tendons in my left wrist again and am extremely fatigued from over-doing it getting to all these things as well as from my menorrhagia.
Tomorrow I have to get over to the GP for bloods which must be done tomorrow – I may have the much less unusual polycystic ovarian syndrome (PCOS) or a hormonal imbalance and so the test requires to be done on specific days. I often wonder, how the heck can I possibly have all of this crap wrong with me?
So that’s what’s going on with me, hope you’re all doing OK?