The long-awaited 2017 criteria for EDS and the associated papers have been released! Phew!
The new nosology includes 13 types of EDS.
Many of these are new to the classification table, they are not newly described though as it has been 20 years since the last classification in 1997. (You can find the old 1997 Villefranche classification in my ‘Types of EDS’ post from a while back.)
This is very exciting for those people with diagnoses of these rarer types. They have finally been properly recognised as members of the EDS family! Continue reading
In case you missed the memo, today is Rare Disease Day 2017!
Added together, rare diseases are not rare. Around 1 in 10 people have a rare disease.
A disease is classified as rare when it affects fewer than 1 in 2000 people in Europe.
2017 is the 10th Rare Disease Day and has a theme of research. I’m going to talk a bit about the new EDS research and diagnostic criteria due to be released very shortly. Continue reading
For this post I’ve come up with 4 products I have loved this year and another 3 I have disliked and thrown or given away.
It’s quite disappointing that I couldn’t find more make-up ‘loves’ out of all the new products that came out in 2016. The consumer brands all seem to be producing the exact same things as one another, endless ‘dupes’ and copying – it’s all a bit well, meh.
Then there’s the fact that there are only so many contour palettes with dozens of shades anyone needs *cough*the answer is none!*cough* Banana powder will never suit pale ladies no matter how hard the now multiple brands producing it try to push it. In 2017 – lets do something different huh? Continue reading
For my college Christmas competition I created a “Christmas Shopping Zombie” character and wanted to share the finished make-up with you here.
I used a few different techniques including prosthetics to complete the make-up.
It was really quite stressful but so worth it in the end. I didn’t get to finish everything I had wanted to add to the character in the allotted time but it came out pretty good nonetheless.
My completed zombie creation finished in second place in the competition with the help of my brilliant model Beth!
Here we are with my tutor receiving my certificate and prize. Unfortunately you can’t quite see all my props here but inside her shopping bags are a brain I made from latex and similarly created severed hand!
I hope all of you are having a great holiday season and enjoying any time off work/school you have. Fingers crossed for 2017 huh?
Yes, you’re right I have been! Sorry I’ve been MIA for a month or so, I’ve been seemingly stumbling from one health issue to the next recently.
After I finally got over the virus I had which knocked me out for a week or more it was “bendy week”. Women and girls with EDS get much more hypermobile when the hormone progesterone is high in their bodies as it destabilises collagen. As a result of this and my fatigued muscles I dislocated my shoulder joints (including both the socket and the AC joint) of my left arm so much it seems to have caused some lasting damage. Rheumatology have ordered scans as they think there’s a tear. All of the muscles in the area are going into spasm what feels like constantly and this is causing me to have headaches.
My need to take extra pain relief has triggered my gastroparesis symptoms and so food is once again not on my list of things I’m even wanting let alone enjoying but I have to keep forcing something down in order to take pain relief.
I can’t believe I missed covering Halloween on here but if anyone wants to have a nosy at some of the things I was able to do you can have a look at the photos over in my course Flickr album here.
I hope you all had a great time turning yourselves into witches, mummies and zombies and didn’t have too many “bendy problems” to get in the way!